Why are we doing this? The puzzle starts to fit. Lucien speaks of the loss of his parents. That’s the reason why he is doing this, it’s his motivation. We have little time and we talk too much and do too little. We have to share ideas, information, inspiration together with patients. And use the modern technology! Lucien Engelen is synonymous to Health 2.0; at the time Luciens parents lived there were no ‘social media’.
He believes there can be no healthcare (improvement) without the contribution of the experience, skills and knowlegde of patients. That’s why he starts the project ‘Patients included’. Patients are the real champions. He also developed the AYA4 community together with young adults with cancer.
Lucien introduces in his TEDtalk one of these patients: Jip Keijzer. Jip Keijzer, blue eyed and handsome like a summer breeze, is the true ambassador of living life to the max. However, unexpectedly, he is confronted with cancer at the age of 21. But he didn’t allow the cancer to take over his life. Jip himself was guided by the motto ‘change what you can not accept, accept what you can not change’.
Now Jip his journey on earth has ended. But as a true ambassador, he brought people into action to care for young adults with cancer and to change what has to be changed. That trip we will continue, together with patients and healthcare professionals.
We are obliged to Jip that we will always remember his message and share it. For the benefit of all the patients after Jip. And their next of kin. He left us his experience of his life in the face of cancer. He left us his diary. And he inspired to compose the theme-song of the Adolescents and Young Adults with cancer Platform: ‘Live! Powered by Jip’. Let it be catching! Let’s start this moment to transform the healthcare system! Keep your head up, keep your heart strong.
A blog by Eveliene Manten-Horst